Wednesday, February 26, 2014


After almost 5 years I am happy to finally report some good news from the start. Julia's biopsy results were much better than anyone expected. The final report is that it is showing "early,early disease". The doctors are happy with this and calling this a good biopsy result. Julia also had her follow up heart biopsy and that too was good. The rejection is gone. Julia's doctor has registered her into a clinical trial in Texas. We are just working out the details but it looks like we will head to Texas to start more advanced cell therapy. Texas will attempt to grow Julia's own cells and this will take a couple months so in the mean time Julia will begin oral chemo. Julia is well and has been able to attend school which makes her so happy. It's been a long, hard, stressful road and despite the good news I am extremely stressed out on the next steps. I keep telling myself everyday to just take a step back and enjoy Julia being well right now, but that's a lot easier said then done. We are so so lucky that we have the best oncologist ever. She is so kind, dedicated, and has done so much for Julia. I want to thank all of you for your support and encouraging words. I will keep you posted on the next steps as I know more. Nadia

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